Research study, call for participants- ‘What is important to children and young people with autism and their families?’

Post by Jennie Fleetwood:

I am a student at Sheffield Hallam University (SHU) writing the final research project for my MA Autism Spectrum. I am gathering information on how outcomes are set and measured for children and young people with autism. I am interested to know if, and how, professionals, families and young people with autism are working together to set and achieve shared goals and outcomes. I would like to find out if young people and their families are being included in planning for their futures and able to take an active role in deciding what is important for them.

Who can take part? Due to the specific focus of this project I’m looking for participants based in the UK only. Anyone under the age of 19 on the Autism Spectrum; Parents or carers of children and young people with Autism/ ASD; professionals working with children or young people with Autism/ ASD.

What do you have to do? Follow the link below and complete the survey. This should take no more than 10 minutes of your time. At the end of the survey, you may be asked if you would like to take part in a follow up interview. The interviews will take place separately at a later date, but you will be sent more detailed information if you are chosen to take part in an interview.

Important information- This study has full ethical approval from SHU. Participation in this survey is entirely voluntary and responses are anonymous, unless you choose to include your contact details for a follow up interview. In all cases, the final results to the survey will be kept anonymous to the public and only the researcher will see your details, for the purposes of contacting you to arrange the interview.

You are entitled to withdraw from this study up to the closing date of the survey (9th June 2017). After this date, analysis of the data will be taking place and it will not be possible to remove your responses.

If you have any questions about this research, please contact the researcher at

To take part in the online survey, please go to:


About The Autism Centre, Sheffield Hallam University

The Autism Centre is part of the Department of Education, Childhood and Inclusion within the Faculty of Development and Society, Sheffield Hallam University. The Autism Centre promotes a view of autism as a different way of being. Whilst many people may live happy and accomplished lives with autism, different ways of being can challenge and confuse others. To help with understanding The Autism Centre delivers accredited courses at undergraduate, postgraduate and doctoral level. Its team of academics engage with research and consultancy and publish widely on the autism spectrum and disability.
This entry was posted in Uncategorized. Bookmark the permalink.

One Response to Research study, call for participants- ‘What is important to children and young people with autism and their families?’

  1. Interesting study. What are you defining as autism?

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s